Name: |
Chiara |
State: | New Jersey |
Date of diagnosis: |
11/03/2014 |
Age at time of diagnosis: |
42 |
Stage of diagnosis:
|
Stage 3 - Triple Negative |
Last 'NORMAL' mammogram: | 2 months prior to diagnosis/cancer STILL invisible on mammography once felt |
How was cancer diagnosed? | Felt by Chiara - ultrasound confirmed diagnosis |
Chiara's Story:
Upon my return from studying in Florence, Italy to get my Master’s degree in Italian Culture, I went to my primary care physician in August 2014 for my routine physical. She gave me a breast exam and told me, at the age of 42, that I did not need a mammogram. Even though I don’t have immediate family history of breast cancer, I didn’t feel comfortable with her advice; I consulted with another doctor who promptly ordered a mammogram.
The mammogram in August 2014 was 'normal.' I do not recall reading anything about breast density on my report; the topic of my breast density was not brought up, I did not know to ask about it and I was not offered information. I was happy to be “healthy.”
On the eve of my 43rd birthday, October 24, 2014, I felt a large, golf-ball sized mass at 2:00 on my left breast, I was terrified by this foreign object. My boyfriend told me it was probably nothing, marking the beginning of his denial and the fight for my life.
After I felt the lump, a new PCP ordered another mammogram. At 2.3 cm, the lump was still not visible on the follow-up mammogram! Immediately, an ultrasound was ordered, and the tumor was clearly visible. A biopsy confirmed that I had breast cancer.
My breast surgeon showed me the mammogram and ultrasound images, saying finding a tumor in dense breast tissue is like “finding a snowball in a snowstorm” on a mammogram. The breast surgeon I got a second opinion from ordered an MRI, which was controversial – my first breast surgeon said she doesn’t order MRI because of potentially delaying treatment. I decided to go with the MRI, and did have to get a second mass biopsied, determining I had stage three breast cancer, due to the two large masses in one breast.
I was baffled as to how mammograms and breast exams could not have found my malignancy; I was told that this often happens with women who have dense breast tissue. Since I had triple negative breast cancer, the tumor grew quickly. I wish the radiologist and PCP did their job and ordered further testing; if my tumor had been found when it was very small, I would have been a candidate for a lumpectomy, conserving my breast and its sensitivity.
Since my diagnosis, I started a blog called www.beautythroughthebeast.com where I blog about my cancer journey, emphasizing the importance of women knowing their breast density. I attend breast cancer support groups and am involved in fundraising for breast cancer. Since I am open about my story, the first thing I say to women, broaching the topic of breast health, is the importance of knowing their breast density: I tell women to ask their radiologist about their breast density, and if they have dense breast tissue, to get further testing - starting with a 3D mammogram and then discussing adjunct screening with health care providers.
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