Sue from Ohio knew was she had extremely dense breasts. Her grandmother died from breast cancer and her mother and aunt had breast cancer. While it could not be firmly confirmed, she believed from her family stories that her great grandmother also died from breast cancer.
Sue already had one biopsy that was negative. Her health care providers recommended tamoxifen to reduce her risk of breast cancer along with continued screening. After much research, Sue, with her breast surgeon's agreement, decided to have a prophylactic bilateral mastectomy.
Sue's Story: I always knew I had dense breasts from the report every year after my mammogram, but I never really knew what that meant until I went for an ultrasound and the technician took a record 32 pictures because she couldn’t tell what was what. The Radiologist then came in and said, “WOW you have really dense breasts!” It turns out I had 75% - 100% density. That scared me and I wondered what I could do. I also found out my aunt, her mom/my grandmother and her mother had all had breast cancer.
I made an appointment with a dedicated Breast Center locally. The doctor reviewed my records and we discussed my risks and he suggested seeing an oncologist, doing surveillance and taking Tamoxifen. I said OK, but then went into research mode. I researched Tamoxifen and decided I did not want to take it. I did further research and just happened upon Prophylactic Bilateral Mastectomy or PBM. Basically it is surgery to remove both breasts to reduce the risk of developing breast cancer. I couldn’t find a lot of information on it in 2010, but the information I did find was positive. I made a list of all the reasons I didn’t want to do surveillance, and why I did want PBM and presented it to my Breast Surgeon. He agreed that PBM was a good choice for me.
I then saw a Plastic Surgeon and we went over all the options for reconstruction. I decided on DTI which is Direct to Implants, and to use silicone and decided that I would not keep my nipples/areola’s. I had the surgery in December of 2010 and had nipple and areola reconstruction 18 months later. Genetic testing later revealed that I did not have a mutation.
There are a lot of reasons I did not do surveillance and wanted the PBM.
Never stop advocating for yourself, if I had not advocated for myself, I would be taking a cancer preventative drug, going to endless appointments, testing, worrying, waiting, and not really living the life I wanted to.
I try and “pay it forward” by being involved in closed Facebook groups, and helping them with questions regarding recovery from surgeries, preparing for surgery, questions regarding the type of surgeries I had, etc. Since they are closed groups, we are free to touch on many subjects that would not be allowed otherwise.
I want to thank Are You Dense Inc. for sharing my story and offering another option besides surveillance. If you want more information, please contact me at [email protected]
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Breast density is one of the strongest predictors of the failure of mammography screening to detect cancer.
Two-thirds of pre-menopausal women and 1/4 of post menopausal women have dense breast tissue.
Adding more sensitive tests to mammography significantly increase detection of invasive cancers that are small and node negative.
Cancer turns up five times more often in women with extremely dense breasts than those with the most fatty tissue.
While a mammogram detects 98% of cancers in women with fatty breasts, it finds only 48% in women with the densest breasts.
A woman at average risk and a woman at high risk have an EQUAL chance of having their cancer masked by mammogram.
Women with dense breasts who had breast cancer have a four times higher risk of recurrence than women with less-dense breasts.
A substantial proportion of Breast Cancer can be attributed to high breast density alone.
There are too many women who are unaware of their breast density, believe their “Happy Gram” when it reports no significant findings and are at risk of receiving a later stage cancer diagnosis.